Yes, I’m still here. Or at least a part of me is.
I still do not know what is wrong with me. The doctors have given up. They’re calling it fibromyalgia for lack of any other diagnosis.
The good news is that I have nothing “serious” like ALS, RA, MS or cancer.
The bad news is that I still have limited use of my hands and arms, need help dressing and am in constant pain — although it varies from extremely light to near crippling depending on how much I am using my hands.
Fortunately I have found a wonderful pain management and rehabilitation doctor who is turning to some alternative forms of medicine for treatment. He assures me that once the pain is gone and toxins are removed, function will return. I don’t believe him. I think something is wrong and the doctors are looking in the wrong places, but I am told any further testing would be futile — by two different specialists.
In fact, I’ve been told to ride it out and see if the pain management doctor can help me and then we’ll look into it again in another six months …
So, my disbelieving self is going along with the plan, because there are no other options. My intellect has given up hope, but I believe my deep inner emotions still have some sort of faith because without some hope, what is the point of continuing?
We begin acupuncture and cupping today and aqua therapy tomorrow. We shall see how it goes.
For now, I am enjoying summer without my two favorite outdoor hobbies — biking and kayaking.
Matt put a few tomato plants in pots for me to watch grow. He also planted a couple of cucumber plants, some swiss chard, two mini sweet pepper plants and a couple of green onions, along with a few herbs. Everything is in either a pot or a small raised garden right outside the back door, so there is no weeding. Obviously it will only generate enough food for a dinner here or there, but it is something.
On a good day, I am able to water the pots and fill my bird feeders. On a bad day, my husband does it for me.
Speaking of birds, I spend a lot of time outside just sitting and watching them.
Last week, I happened to have my camera with me and was privileged to witness this red-wing blackbird putting on a marvelous display. All of the photos were taken from my back porch, where I was sitting. He was prancing and showing about 20 feet in front of me on my swing and around one of the bird feeders. He went on for about 10 minutes, with lots of breaks in between to call, dine and rest.
It was so incredible to see. I so thankful I had my camera so I could record the moment!
Candy, I wish there were something they could find that would work. I know that before I started with pain management, I could barely walk. I didn’t think I could ever really enjoy a pain-free day again. Fortunately, they were able to help me. I’m praying they can help you too. BTW my daughter hasn’t mailed many of the invitations. She is sending them to me and I have to pass them out. I hope she mailed your families invites but she is such a procrastinator. Photos are beautiful!! Love you, Robin